Home Health and Hospice Frequently Asked Questions

What You Need to Know as You Seek Care for You or a Loved One

Don’t let your many questions about hospice or home health care prevent you from finding compassionate, expert support. We’ve answered the most common questions here, so you can make informed decisions for yourself or a loved one.

Getting Started with Home Care

Start with a conversation, not a contract. We make the process of finding care simple and personal. Call our CARE Team at (866) 296-0493. They’ll walk you through every step, answer your questions, and help you feel confident about your next move.

View our complete list of home care and hospice services.

Yes, round-the-clock care is available.

Home care and home healthcare are general terms for all services provided in the home.

However, home health services are skilled services provided by licensed professionals, such as registered nurses (RNs) and therapists. Visit our home health services page to learn more.

Yes. Contact our team to find out which Phoenix service is the best fit for your needs.

Yes. Our team is highly trained and sensitive to the needs of people with these conditions.

Hospice is a complete service offered by our team. Visit our hospice page to learn more.

Cost depends on what kind of care you need, how often you need it, and how it’s paid for. Here’s a quick breakdown:

  • Private duty care rates: Typically paid out-of-pocket, rates vary by location and level of care, such as whether you need personal care or nursing. Scheduling is flexible, allowing you to choose care in two-hour blocks of time or even 24/7 support.
  • Medicaid-covered programs: Medicaid may cover care through programs like Healthy Children and Youth Private Duty Nursing,
  • Private insurance: Ask your provider about reimbursements for some home health costs.
  • Veterans benefits: Contact the Department of Veterans Affairs’ benefits hotline at (877) 222-8387 to find out what may be covered.
  • Medicare-covered programs: Medicare may cover home health services and hospice.

Yes, but please refer to our answer to the question above to understand what may be covered by these plans.

If you or a loved one receives private duty care, we offer a payment plan for those with financial hardship. For all other services, please contact your state assistance program.

Minimums vary based on the service lines we provide. Medicaid programs are state-authorized and must follow the authorization provided for time spent receiving care. You can receive private duty care for at least two hours per visit.

If you’re starting to worry about your loved one’s safety, health, or independence, it’s time to explore options. Here are signs that home care might help:

Daily life is getting harder:

  • Trouble with bathing, dressing, or meals
  • Forgetting medications or missing appointments
  • Overwhelming errands and housekeeping

Health and safety risks are rising:

  • Frequent falls or mobility issues
  • Worsening chronic conditions
  • Noticeable weight loss or decline in hygiene

You’re feeling stretched thin:

  • Family caregivers feel burned out or overextended
  • You’re unsure what kind of help your loved one needs, but you know they need something
Yes, you are more than welcome to do so! Ask our team to set up this meeting.

Caregivers do not need to be licensed, but they are highly trained. We run background checks on all our employees.

We try to keep the same caregiver with patients as much as possible.

If you feel comfortable with this solution, we will fill the opening with another Phoenix caregiver.

Absolutely. Let us know how we can best meet your needs.

When we hire, we look for the “x-factor” that separates good nurses and caregivers from those who are genuinely excellent, committed, and compassionate. We also offer continued training and retention programs to keep the best talent on Team Phoenix.

Phoenix Home Care & Hospice has offices throughout Missouri, Kansas, and Illinois.

Phoenix Home Care & Hospice is unlike any other home health provider. When you choose Phoenix, you experience:

  • A relationship-centered approach; we care for the whole person.
  • Compassionate care centered on improving patients’ quality of life.
  • A commitment to providing New Beginnings for both patients and team members.
  • A talented care team, hand-picked for their skill, experience, and investment in professional growth.
  • Engaged founding members who keep us close to our mission and values.

In-Home Care & Caregiver Services

Live-in caregivers are available through local caregiving agencies. These caregivers provide consistent care around the clock. However, caregivers don’t have to live in the home to provide 24/7 care. Private duty caregivers are also available 24/7, delivering all the benefits, help, and support of a live-in caregiver without the client providing a place for them to stay. A leading home care provider can staff familiar, professionally trained private duty caregivers who take shifts to ensure the team is rested, refreshed, and ready to provide care.

Professional caregiving agencies are always the first choice for a 24/7 caregiver to ensure professionalism, high standards, and expertise. Ask your chosen agency about each of these categories to determine the right fit:

  • Professionalism: How are your caregivers trained? What are your standards for caregivers?
  • Standards: What standards or values should I expect to see in action during caregiving?
  • Expertise: What makes your caregivers different from others in the area?

As you search for a caregiver, keep in mind that “live-in caregivers” go by other names in the caregiving marketplace, including private duty caregivers. Private duty care, like live-in care, provides professional caregivers in two-hour blocks of time up to 24/7 care. Private duty caregivers help with daily living tasks, such as housekeeping, meal preparation, laundry, transportation, companionship, and more, just like a live-in caregiver.

Live-in home care offers 24/7 care in your home, so that there is always someone present for help with daily tasks, such as personal care, housework, companionship, transportation, and medication reminders. A comparable service, private duty care, can also staff caregivers around the clock without the client providing living space for the caregiver. This is the typical process for starting care with a live-in or private duty caregiver:

  • The caregiving agency assesses your needs, preferences, and care goals.
  • They create a customized care plan, including all important details.
  • You are assigned a professional caregiver or caregiving staff who can meet your needs.
  • Your caregiver(s) arrive as scheduled to provide ongoing care, 24/7.
  • Your agency sets up regular communication to ensure care is going as planned.

A Certified Nursing Assistant (CNA) job and a caregiver job support people at home. CNAs are certified care professionals. Caregivers may or may not be certified depending on the particular job and state requirements.

A CNA role requires a formal certification and often includes more hands-on personal care that requires clinical training. A caregiver job may include some personal care, but focuses on daily living support, including light housekeeping, laundry, meal preparation, medication reminders, and companionship.

When considering hiring a live-in caregiver, ask yourself whether you can realistically accommodate living space for another person in your home. If not, you have an alternative option, private duty care, which provides caregiver coverage 24/7 without the need to live in. Regardless of what you choose, ensure that you interview your caregiver agency to understand how they are screened and trained, what to expect during services, whether available services will meet your specific needs, and how the agency communicates when you have questions or concerns.
Yes, but the comparison will require effort and research to determine the best choice for you. Start with websites and reviews. However, it is critical to go deeper and get peace of mind by asking your questions during an interview with a potential caregiver agency. Here are some example questions to help you evaluate their services:

  • How do you screen caregivers?
  • What kind of training do they receive?
  • Do you always send the same caregiver?
  • How do you communicate with your clients?
  • What should we expect from our caregiver?
  • What makes your caregivers special?
Look for reliability, clear communication, and the right fit. You should feel completely comfortable with your caregiver, know what to expect from them, and be able to communicate openly and honestly with them. Also consider researching the caregiver agency’s values. Their values should match your own and should show up in the way your caregiver delivers care.
Caregiver support services are available to help ease the burdens of family caregiving. Here are five different support resources that may be able to help:

  1. Comprehensive disease management, also known as chronic disease management, provides assistance with several aspects of caregiving, including help with care coordination, setting care goals, collaborating with physicians, emotional support, durable power of attorney, and advance directive paperwork, access to community resources, and more.
  2. Consumer-Directed Care allows families to hire their own caregivers, including family members, while a home care agency handles the administrative work. For veterans, the Department of Veterans Affairs offers a stipend, health insurance, and mental health counseling to family caregivers through the Program of Comprehensive Assistance for Family Caregivers.
  3. Respite care programs to help family caregivers take a break are available through care services like private duty care, Home and Community-Based Services (including waiver programs), and hospice.
  4. Emotional support programs help family caregivers navigate their challenging role. Consider the Caregiver Action Network (CAN); disease-specific organizations, like the American Cancer Society; or online communities with message boards where caregivers share their experiences and give each other hope.

Hospice & End-of-Life Care

The best hospice company in your state or region is determined by customer trust, quality of care, and expertise. Each part of the United States has premier hospice care providers who stand out from the rest.

The best regional hospice providers:

  • Gilchrist, serving the Mid-Atlantic region (Maryland, South-Central Pennsylvania, and Northern Virginia).
  • Hospice of the Valley, serving Maricopa County, northern Pinal County, and the Tucson area in Arizona.

The best state and multi-state providers:

  • Ohio’s Hospice
  • Hospice of Michigan
  • Phoenix Home Care & Hospice, serving Kansas, Missouri, and Illinois

Hospice care begins with a care team visiting your home to explain hospice benefits. The team will also create your individualized care plan in collaboration with your physician and hospice physician.

Hospice care provides the following services:

  • 24/7 on-call nursing support for questions and concerns
  • Hospice aide visits for personal care
  • Medical social work for resources and emotional support
  • Chaplain services for spiritual care
  • Medications, supplies, and equipment related to the terminal illness
  • Short-term respite care for caregiver relief
  • Bereavement support for families
  • Trained volunteers for companionship
  • Additional comfort-focused services, such as physical, occupational, or speech therapy, and dietary counseling, when needed
  • A care plan tailored to individual patient needs
  • General inpatient (GIP) hospice when needed

Across Missouri, Kansas, and Illinois, you have several options for end-of-life care. The most common form of hospice care is home hospice, which occurs in a residential setting, such as your house, nursing home, or skilled nursing facility. General inpatient (GIP) hospice at a hospice house or hospital is also available for short-term hospice services when family caregivers need a break or symptom and pain management requires more support than can be provided at home.

Your options also include a choice between local, regional, state, and national providers. Local providers specifically serve your community; regional providers balance a local approach with a wider reach; statewide or nationwide providers offer the broadest coverage, while serving individual communities.

Hospice care can be specifically tailored to the needs of dementia patients, including compassionate, sensitive care for pain and symptom management, emotional care, and spiritual support.

Dementia is a life-limiting illness that qualifies for hospice when a doctor certifies that they’ve met certain criteria based on the Functional Assessment Staging Tool (FAST) scale. This scale identifies cognitive and verbal decline, physical complications, nutritional decline, and an inability to perform activities related to daily living, such as walking, bathing, and dressing.

If a dementia patient can still make medical decisions, they determine whether hospice is the next best step. If not, the decision usually falls to their legally authorized representative, such as a healthcare proxy or durable power of attorney.

Hospice is comfort-focused care for someone with a life-limiting illness that would normally run its course in six months or less. Instead of trying to cure or treat the illness, hospice focuses on pain and symptom management and enhancing the patient’s quality of life as much as possible. Under Medicare, patients qualify for hospice when they wish to stop treatment and choose comfort care for their terminal illness, and their doctor orders hospice.

During hospice, your chosen team creates an individualized plan of care that is centered on pain management, comfort, and quality of life. Care can include nursing visits, a bath aide, social workers, spiritual support from a chaplain, community volunteers, and bereavement counseling.

All medications, equipment, and supplies related to the patient’s terminal illness are provided. A 24/7 nursing line is available for after-hours questions and concerns. There are options for inpatient respite care to give family caregivers relief and general inpatient care (GIP) when additional care is needed to control symptoms. Some hospice agencies also provide pamper care (e.g., hair styling, premium bath products, nail polish, and other self-care routines) to further enhance patients’ dignity and quality of life.

Palliative care focuses on pain and symptom management. It can begin at any stage of an illness and is provided alongside treatment that is meant to cure or manage the disease.

Hospice is a specific Medicare benefit for people with a life expectancy of six months or less and who have chosen the comfort of pain and symptom management instead of seeking a cure for or management of their illness.

Palliative care and hospice care are often used interchangeably, as a hospice patient is receiving the same kind of care that palliative care provides, just under different circumstances. You will hear many patients and healthcare professionals refer to hospice as palliative care, but from a Medicare perspective, the difference is distinct.

Insurance & Paying for Care

Live-in caregiver services and other 24/7 care depend on your state and zip code. The Federal Long-Term Care Insurance Program’s website allows you to view estimates for your specific location. Caregiver services with 24/7 care, such as private duty care, are paid out of pocket through long-term care insurance or authorized Veterans Affairs benefits.

Medicare and Medicaid cover the cost of hospice care for patients who qualify. Most private insurance plans include some hospice benefits, although coverage can vary. It is important to work with a knowledgeable hospice team that can interpret your benefits and coverage, so you get clarity and understanding during this time.

HCBS & State Programs

Home and Community-Based Services (HCBS) providers help people receive long-term support in their home, as opposed to a clinical setting. These services are designed for people who need help with daily living, often because of ongoing medical or functional needs.

Depending on the specific state program, HCBS providers may help with bathing, dressing, meals, housekeeping, medication support, respite care, transportation, and more. The main goal of HCBS is to help people stay as independent, safe, and connected to their community as possible. Ask a provider in your state to better understand specific services and eligibility.

Choose a Home and Community-Based Services (HCBS) provider by ensuring they offer the specific support you need at home, such as personal care, light housekeeping and laundry, respite care for a family caregiver, or assistance with transferring. Ask about the team’s licensing, accreditation, approach to communication, caregiver screening and training, what to expect during visits, and the values your caregivers are committed to. You should also confirm that your provider accepts your insurance coverage or waiver program, so you know what to expect.

The biggest benefit of Home and Community-Based Services is the opportunity to receive care at home, as opposed to receiving care in a facility setting. This allows patients to maintain their independence, live with dignity, and stay safe, while remaining in a comforting environment.

Home and Community-Based Services (HCBS) waivers allow states to use Medicaid flexibly so that certain groups, such as those with specialized needs, get specific services at home.

Examples of HCBS waivers:

  • Kansas has a Technology Assisted (TA) waiver to help children and young adults who are dependent on critical equipment that compensates for a loss of an organ or bodily function, such as a ventilator.
  • Kansas also has an Agency-Directed Services waiver that allows patients to receive HCBS personal care, respite care, and other common HCBS caregiving services.

Home and Community-Based Services (HCBS) provide support in home and community settings to ensure a patient’s daily ongoing needs are met. Available through Medicare and Medicaid insurance, HCBS includes activities associated with daily life, like personal care; assistance that allows for independent living, such as help with meal prep, errands, and household work; health management; and more.

Medicare home health includes help from skilled nurses, medical social workers, and interdisciplinary healthcare professionals, like physical therapists. HCBS does not provide these healthcare services.

Private duty care offers similar care services to HCBS, yet it is paid for out of pocket, with long-term care insurance, or eligible Veterans Affairs benefits.

Institutional care is delivered in nursing facilities or other facility-based settings that may cover many of the same services as HCBS.

To find local resources for autism respite care, start with national locator tools, like the Access to Respite Care and Help (ARCH) Network, the Autism Society National Helpline, or the Autism Speaks respite tool.

You can also search for home care providers in your area that have Home and Community-Based Services (HCBS) and HCBS waiver programs that provide respite care through Medicaid and Medicare, including:

  • Missouri: In-home care through the Missouri Division of Developmental Disabilities / Department of Mental Health.
  • Kansas: Home and Community-Based Services Autism Waiver (ages 0–5) or Intellectual/Developmental Disability Waiver (ages 5+).
  • Illinois: Waiver for Children and Young Adults with Developmental Disabilities (ages 3–21) or the Waiver for Adults with Developmental Disabilities (18+).

Check with your chosen home care provider to learn about eligibility and whether respite care is available in your region.

In-home care helps adults with special needs by allowing them to receive care in the comfort and familiarity of home. In-home care empowers adults with special needs to live independently and with dignity, while receiving the help they deserve. Depending on the program, services may include personal care, respite care for family caregivers, and even social and emotional support to help those in need to live full, meaningful, and connected lives.